Amyotrophic Lateral Sclerosis (ALS) is a rare, progressive neurodegenerative disease that attacks the brain and spinal cord leading to loss of voluntary muscle movements. ALS cases can either be classified as sporadic or familial, meaning a certain gene was inherited from one's parents. There are a few identified genes that can cause ALS, but the most prevalent gene leading to ALS is the Chromosome 9 Open Reading Frame 72 (C9orf72) gene. On September 21, 2021, Linda Agosti, wife and mother of 4, began her fight against ALS. Linda's ALS was caused by the expression of the C9or72 gene, which she inherited from her mother. Since the C9orf72 gene is passed on dominantly, there is a 50/50 chance that each of Linda's 4 children will possess this ALS-causing gene.
Linda is a role model throughout the community spreading kindness and love to every person she meets. Her laugh and smile are contagious. The Believe 4 Linda Foundation was created to join the fight against ALS with Linda and other people living with ALS. Furthermore, the foundation aims to fund research to prevent the possibility of people inheriting the C9orf72 gene or to target preventive therapies for ALS-causing gene.
The Believe4Linda foundation was created to raise funds for ALS gene research and to help alleviate costs for families struggling with the financial burdens of ALS.
To overcome ALS together